ESR Fatma S. Doğan at The Young Digital Law Conference 2023
ESR Fatma S. Doğan participated in The Young Digital Law Conference 2023 between 5th-7th July. The conference was organized by the University of Vienna, Department of Innovation and Digitalisation in Law and the Research Platform Governance of Digital Practices Department of Innovation and Digitalisation in Law, and the Research Platform Governance of Digital Practices. Fatma presented her study titled “Digital Discrimination in Healthcare and European Health Data Space Proposal”.
The emerging point of this study comes from technological developments in the medical sphere with the increasing use of AI technologies. Although these enhancements look highly promising, bias in these systems and related outcomes poses a prominent caveat. In her study, Fatma sought the question of ‘how does recently proposed European legislations plan to tackle this problem while putting a specific focus on the European Health Data Space proposal’. The European Health Data Space proposal was introduced last year with aiming to harmonize electronic health data systems of Member States and enable secondary use of health data for new technological developments. The proposal has numerous provisions related to AI systems yet would they bring a solution to bias-related issues in healthcare is open to discussion. Due to the reference to the AI Act proposal, Fatma also included the relevant provisions of the AI Act in the discussion.
The conference was filled with insightful talks and engaging keynote addresses. At the end of the third day of the 
conference, the final panel took place at the Austrian Supreme Court, which allowed young researchers to witness the incredible atmosphere of the Supreme Court. Fatma also had the opportunity to receive valuable comments and thought-stimulating questions following her presentation.
concept of data ownership, and its
Brussel (VUB). 
In their collaboration, the ESRs combined their different research interests in law and machine learning, which enabled them to develop an interdisciplinary perspective on challenges posed by different approaches to data governance. The predominant part of the current discussion in EU data policy is centered around the challenging task of creating a data governance framework where data is ‘as open as possible and as closed as necessary’. In their article, the ESRs further elaborate on the concept of data collaboratives powered by decentralised learning techniques as a possible remedy to the shortcomings of existing data governance schemes.
Data collaboratives have been described as new emerging forms of partnerships where privately held data is made accessible for analysis and where collaboration between participants is facilitated to unlock the public good potential of previously siloed data. [1] They thus fit well the EU policy shift that has taken place over the past years. Whilst for decades, the introduction of exclusive property rights was discussed as a potential tool to empower data subjects with regard to ‘their’ data and to facilitate the emergence of data markets, this changed with the 2020 European Data Strategy. Now, the potential of the data economy should be unlocked by facilitating data access and sharing. The authors presented their concept of data collaboratives powered by decentralised learning techniques, which can be used as a tool to reach the goals of the current EU data strategy: facilitate access to data while protecting privacy and intellectual property interests which individuals and companies might have with regard to ‘their’ data. The collaboration between the ESRs thus reflected the idea behind the LeADS project that solutions to existing tensions in the data economy require an interdisciplinary perspective from both law and data science.
multinational health data-sharing efforts who were unsure about the usefulness of the EDHS for facilitating easier data sharing, as it seemed to only add EU certifications on top of specific national requirements (which were sometimes at odds).
Prof. Paul De Hert, one of LeADS supervisors, gave the Conference’s opening speech, introducing the new activities and the main topics discussed in 2023, such as the EDPB elections and the future of data protection in Europe in the face of recent EU Regulations.
harms: A multidisciplinary, Antecipatory Perspective”, organized by one of LeADS beneficiary Interdisciplinary Centre for Security, Reliability, and Trust (SnT), University of Luxembourg (LU), exploring the harms posed by dark patterns – such as the cookie banners – and how to address them. Arianna was also a workshop facilitator at the workshop “Personalised Privacy; How can we leverage personalisation for better privacy protection?” organized by Maastricht University, Law and Tech Lab.
panelist at a panel on “The Underuse of Personal Data, Its Opportunity, Costs, and EU Policies” organized by the University of Turin, which focused on how the underuse of personal data can pose risks to society, such as hindering technological development of health research.
Her findings point out that both DGA and EHDS don’t offer a detailed explanation of what terms could entail. Moreover, all three of the legislations will be regulating an intersecting ground, thus, their differences have a possibility to create discrepancies. Her study sought to discuss the similarities and differences between the referred legislation in terms of the mentioned concepts and make sense of their interplay.
The workshop was divided into three sessions the first Session focused on thesis presentations, Session 2 focused on presentations on the topic of cybersecurity and Session 3 was entered on material, logical and systemic security. Prof. Jessica Eynard, one of the supervisors of the LeADS Project, and Giorgia Macilotti one of LeADS collaborators presented their research in Session 2 the topic Sécurité(s) et identité(s) numérique(s).
